Care+givers+for+ALS

One of the main care givers we will find is our family members and they don't come with professional training, they just do their best with what they have learned and try to understand as much as the person living with ALS.

Healthcare professionals with expert knowledge and experience with ALS is needed to manage this disease properly. The health care professionals who will be involved will include: Family Physician will be the ones to diagnose the disease, they will better explain the diagnosis and possible progression**.** They will continue general medical care, provide support and encouragement which will be needed for both the patient and the family members.

Neurologists with ALS specialty will confirm the diagnosis.

Psychologist for psychological support, people who are diagnosed with this disease will need psychological and emotional support. At the ALS clinic you will be given appropriate referral for the right social workers to take care of ALS patients.

ALS nurse (neuromuscular specialty), will be of great help. They will help develop a care plan, ensure comfort, and address questions and concerns. Including in this team of care we will see Dieticians, to help with the swallowing and the function of eating, including diets that will be more suitable. Occupationnal therapist, to help with correct body positioning, also to get the proper mobility and safety environments in the home. Gastroenterologist they will help with the nutritional care and perhaps feeding tubes if needed. Respiratory therapist and respirologist for the pulmonary function. Speech-Language pathologist for the oral motor function and cognitive- linguistic function. Physiotherapist will help with patient strength, function and comfort. Pastoral care is needed as well, for the spiritual side and comfort.

A lot of care will be needed. It is a team effort, from healthcare professionals, families and friends, including our ALS Society of Canada that does make a great difference in the care of living with ALS.